Mike Has MS

 

Better Living through Pharmaceuticals

My neurologist is absolutely amazing. Dr. Marion Stein at the MS Clinic of Beth Israel Deconess Medical Center never ceases to amaze me.  She’s kind of old school, and I trust her completely.  I’ve been dealing with some issues, and she gave me the option of some heavy steroid therapy.

I’m on my third day at the Infusion Unit at BIDMC. This is my third daily dose of 1 gram of Solumedrol as an IV drip over four hours each day. That will be followed by an 11 day taper of oral Prednisone. I do three days of 80 MG, three days of 60 MG, three days of 40 MG, and two days of 20 MG.

As you look at the article about the steroids, you’ll see there are some pretty intense side effects. My neurologist, being as good as she is, has me on some other stuff to deal with that.  First, I’m on a light dose of lithium to help take off the edge and irritability. She also has me on Serax to help me sleep at night. That stuff is amazing.

I start the oral prednisone on Saturday, and Dr. Stein did warn me that I’ll probably crash on Sunday.  She gave me out of work until Wednesday, but if I’m out past Monday, I have to use my short term disability, and that means I lose a week of pay. I plan on going back to work on Tuesday, meaning if I miss Wednesday, I use my sick time.

In other news, I have a date tomorrow night.

Posted by Mike on 11/07 at 09:19 AM
 

  1. We want date update wink Once you had it.

    Posted by Ulli  on  11/07  at  12:44 PM

  2. Yes, date updates are a must!  Glad you are feeling better Mike, but Im assuming you wont be at puggy playgroup?  We’ll miss you!

    Posted by (JavaScript must be enabled to view this email address)  on  11/07  at  02:10 PM

  3. I’m going to skip the meetup because I will be preparing tomorrow’s dinner. I’m doing the all-day event of homemade chicken noodle soup.

    Posted by Mike  on  11/07  at  11:33 PM

  4. Sounds yummy.  I just cant do soups, Ive tried everything and I cant get it right, not beef stew, chicken noodle, nothing.

    Posted by (JavaScript must be enabled to view this email address)  on  11/08  at  12:10 AM
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My name is Mike Hillwig and I live in Boston with my pug, Reggie. I was diagnosed with Multiple Sclerosis in January 2003 but have been living with MS for much longer than that. This is where you'll find my story, stories, and my history.

I want this site to be a place where people can read about my experiences with MS. I was fortunate enough to catch it really early and my results on drug therapies have been outstanding. This should be a place where people can realize that they can lead a normal life with MS. MS has changed my life, but it hasn't ended it.

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